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To Make An Appointment:
617-724-1971
Director: Othon Iliopoulos, MD
Services
 Our
multidisciplinary clinic is designed for individuals with
an existing diagnosis of von Hippel-Lindau syndrome (VHL)
as well as those who need to be evaluated for VHL disease
and familial renal cell carcinoma. The clinic provides patients:
- Genetic counseling services
- Genetic testing coordination
- Evaluation/diagnosis
- Coordination of care for the various specialties involved
in VHL disease care
- Download
program brochure (pdf)
 A genetic counselor and oncologist who specialize in VHL
disease staff the clinic. We provide comprehensive care to
individuals with VHL by working closely with neurologists,
neurosurgeons, oncologists, ophthalmologists, gastroenterologists,
gastrointestinal surgeons, endocrinologists, and patient advocates,
all of whom have a special interest in VHL.
von
Hippel-Lindau Syndrome Genetic Research
Our research interests in VHL and renal cancer include drug
discovery, clinical drug trials, identification of biomarkers
that predict disease activity, and health behavior studies.
Genetics Specialists
Director
Othon Iliopoulos, MD
Neuro-Oncology
Frederick G. Barker, MD
Paul H. Chapman, MD
Robert L. Martuza, MD
Radiation Oncology
Jay S. Loeffler, MD
Neurosurgery
Robert G. Ojemann, MD
Urology
Douglas M. Dahl, MD
Niall M. Heney, MB, MD
W. Scott McDougal, MD
Gastoenterology
William R. Brugge, MD
Massachusetts Eye & Ear Infirmary
Joseph B. Nadol, MD
Surgery
Carlos Fernandez-del-Castillo, MD
Andrew L. Warshaw, MD
Genetic Counselors
Lauren Carpiniello, MS
Devanshi Patel, MS
Kristen Mahoney Shannon, MS, CGC
Gayun Chan Smutko, MS
von Hippel-Lindau
Information
Download detailed information about VHL.
Additional sources of information:
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