Employee Benefits Study
Newsworthy and Noteworthy
News
Boston Globe – June 6, 2004
"Flexibility is paramount for parents caring for a disabled child"
By Maggie Jackson, Globe Correspondent
Work/Life TODAY – December 2003
"Employers Can Help Parents of Special Kids"
MATERNAL and CHILD HEALTH IMPROVEMENT PROJECTS
Catalyst Project: National Center to Improve Financing of Care for Children and Youth with Special Health Care Needs: The goals of the Center are to expand health insurance coverage of children and youth with special health care needs across the country; to close the financing gaps faced by underinsured families across the country; to develop and disseminate innovative financing strategies at community, state, and national levels; and to ensure high levels of knowledge and collaboration related to financing among key stakeholder groups in all states and territories.
www.hdwg.org
Contact: Carol Tobias/Deborah Allen, 617-426-4447 ext. 11, tcarol@bu.edu; dallen@bu.edu at the School of Public Health, Boston University
Champions for Progress Center: The goal of the Center is to develop the capacity of State Title V leadership to coordinate and integrate system building efforts as described in the President’s New Freedom Initiative, working in partnership with families, communities, and other agencies and organizations.
www.championsforprogress.org
Contact: Richard N. Roberts, PhD, 435-797-3346, Richard.Roberts@usu.edu at the Early Intervention Research Institute, Utah State University
Establishing an Evidence Base for Systems of Care for Children and Youth with Special Health Care Needs: The Center aims to improve access to systems of care for children and youth with special health care needs and their families through identifying and strengthening the evidence base for systems of care and key outcomes of that care in improving outcomes for children and families.
www.massgeneral.org/children/ccahp
Contact: Sheila Bloom, 617-726-1885, sbloom1@partners.org at Massachusetts General Hospital
Family Voices National Center on Family/Professional Partnerships for Children and Youth with Special Health Care Needs: The Center’s goal is to improve access to information so that families of children and youth with special health care needs can make appropriate and accurate decisions about the care of their children and to improve supports to families in navigating the complexities of current systems of care.
www.familyvoices.org
Contact: Jennifer M. Cernoch, PhD, 505-872-4774, jcernoch@familyvoices.org at Family Voices, Inc.
Health and Ready to Work National Center : The mission of the Center is to create change in policy, programs, and practices that will help youth with special health care needs transition to adult health care with funding, work, and independence, raising expectations, and making vital changes happen for youth with special health care needs.
www.hrtw.org
Contact: Patti Hackett, 301-787-8105, pattihackett@hrtw.org at the Academy for Educational Development/DSSC
National Center for Cultural Competence: The purpose of the Center is to provide national leadership and contribute to the body of knowledge on cultural and linguistic competency within the broad parameters of the maternal and child health field.
http://gucchd.georgetown.edu/nccc
Contact: Tawara Goode, 800-788-2066, cultural@georgetown.edu at the Center for Child and Human Development, Georgetown University’s
National Center of Medical Home Initiatives for Children with Special Needs: The mission of the Center is to work in cooperation with the federal Maternal and Child Health Bureau to ensure that children and youth with special health care needs have access to a medical home by improving the ability of pediatric health care professionals and families to care for children and youth with special health care needs through the provision of tools and skills to overcome barriers, implementation of policies, and dissemination of outcomes.
http://www.medicalhomeinfo.org
Contact: Amy Gibson, MS, RN, 847-434-4989, agibson@aap.org at the American Academy of Pediatrics
National Coordinating Center: Genetics and Newborn Screening Regional Collaborative Groups: The primary goals of the Center are to provide a venue for the interaction between regional collaborative groups and national organizations with interest and involvement in improving access to high quality services and to coordinate the activities of the regions to maximize their productivity.
Contact: Michael S. Watson, PhD, 301-634-7127, mwatson@acmg.net at the American College of Medical Genetics
National Resource Center for Early Hearing Detection and Intervention: The Center will assist state agencies and other federal and non-federal partners in the development and operation of sustainable statewide early hearing detection and intervention systems.
Contact: Karl R. White, PhD, 435-797-3013, karl.white@usu.edu at the National Center for Hearing Assessment and Management, Utah State University
