Family Well-being in MA
About the Project
The Center for Child and Adolescent Health Policy collaborated with members of the Family Participation Workgroup of the Massachusetts Consortium for Children with Special Health Care Needs to determine what information from a national survey would be most relevant to families of children with chronic conditions. Funded through a grant from the Deborah Munroe Noonan Memorial Fund, this project sought to better understand the needs of families with children with special health care needs (CSHCN) in Massachusetts. This project had 4 primary goals:
- To better understand the caregiving demands and financial impact on families with children with special health care needs in Massachusetts.
- To determine a second topic of analysis, based on input from the Family Participation Workgroup. The workgroup chose to examine unmet need for health care and family support services among children with special health care needs.
- To relate financial impact and unmet need to the Maternal and Child Health Bureau’s key indicators of progress towards implementing community-based service systems for children with special health care needs.
- To provide policy relevant state-specific information to consumers and advocates in Massachusetts.
The results of this study are provided here for families, advocates, providers and policymakers in the hopes of improving systems of care and relevant public policies for children with special health care needs and in so doing improving the lives of children with special health care needs and their families.
Click on ‘Available Data’ for the results. For each topic of analyses, a PowerPoint presentation, a one-page summary and the detailed tables of results are provided.
